National Intestinal Failure and Rehabilitation Service
The service aims to improve care for people with intestinal failure and make sure that care is consistent around Aotearoa New Zealand.
About the National Intestinal Failure and Rehabilitation Service
The service was created to improve care and treatment outcomes for people with intestinal failure. It also aims to strengthen clinical networks and coordinating care processes around the country.
The service also:
- keeps a register of all patients with intestinal failure to collect data to help doctors understand patient outcomes and improve treatment
- updates a referral process for patients with intestinal failure so patients can be treated closer to home
- pushes for a shared care model of treatment to help patients and clinicians communicate better — this builds partnerships between patients, their whānau, and healthcare staff
- maintains national standards to make sure all patients with intestinal failure get the same level of care
- has a clinical network to help share knowledge about intestinal failure and rehabilitation
- organises research and collaborates with international researchers
- maintains the Paediatric International Intestinal Failure registry with Starship Hospital
- creates resources to help patients and their whānau to understand what intestinal failure is.
Service requirements
The service supports quality care and outcomes through these activities.
- Using ehealth systems to link patients with specialists.
- Giving information to regional and national clinical teams about the different parts of intestinal failure rehabilitation.
- Developing standards to assess patient outcomes.
- Helping patients to get intestinal transplants and caring for them afterwards.
- Making sure good education and resources is available to regional healthcare providers.
- Being a point of contact for clinicians who need support managing patients with intestinal failure.
- Providing a care continuity model so patients get the right kind of care quickly.
- Managing the registry of people with intestinal failure and making sure that information is used properly.
- Sharing treatment processes for people with long-term intestinal failure to help them recover and return to eating food normally.
The National Intestinal Failure and Rehabilitation Service guidance for tamariki and adults available on the Starship website.
National Intestinal Failure and Rehabilitation Service guidance — Starshipexternal link